Fahr Patiënten Vereniging Nederland was established to promote the interests of patients with Fahr’s disease. Additionally the association supports research into medication for Fahr and the establishment of a Fahr Centre of Expertise. To that end the association works in close contact with doctors at Universitair Medisch Centrum Utrecht (the University Medical Centre Utrecht). The Foundation also organises a day for patients at least once a year and publishes a digital bulletin twice a year. We register patients with Fahr and maintain the website.
Chair: Ronald Meliëzer
Secretary: Willem Mali
Finance: Louise Schellen
Member IT/website: John Roeloffs
Member: Evelien van Valen
Fahr Patiënten Vereniging Nederland is registered at the dutch Chamber of Commerce (kvk), No. 77652223