Fahr's disease

Fahr’s disease was considered to be extremely rare until several years ago. Only one out of a million people was thought to suffer from it. Which would amount to 17 patients in The Netherlands. Thanks to genetic research in the last few years we now know that must be several thousand patients in The Netherlands. These people have no symptoms yet or are misdiagnosed.

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I wish for the peace to accept what I can't change, the strength to change what I can't accept and the wisdom to discover the difference between both.

 

Zoals al aangekondigd moest de laatste patiëntendag via het scherm plaats vinden. Wat er toen inhoudelijk gezegd is vindt u terug in onderstaande clips. De volgende patiëntendag vindt hopelijk weer live plaats. Dat zal wellicht september 2022 worden.
 

Patiëntenervaring


Bekijk hiernaast de video van Jasmijn, 43 jaar vertelt over haar ervaringen met Fahr. De aanloop naar de diagnose, ziekenhuis, haar gezin, revalidatie en vooruitzichten.

Geld inzamelen | Doneeractie.nl
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I have Fahr or I think I have. Help!

Have you received the diagnosis or do you think you have Fahr? You can reach the Centre of Expertise through the association.
Centre of Expertise
 
 
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Community

Nieuw: Community voor Fahr patiënten en naasten. Help ons uitbreiden. Meld je aan!
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