Fahr's disease
Fahr’s disease was considered to be extremely rare until several years ago. Only one out of a million people was thought to suffer from it. Which would amount to 17 patients in The Netherlands. Thanks to genetic research in the last few years we now know that must be several thousand patients in The Netherlands. These people have no symptoms yet or are misdiagnosed.
.I wish for the peace to accept what I can't change, the strength to change what I can't accept and the wisdom to discover the difference between both.
Donation campaign
We've started a donation campaign at doneeractie.nl.
Read more about patients John en Bernard. Also watch the video (campaign and video in dutch)
Motor function disorders a.o.
- Stiffness of limbs and torso
- shaking arms and legs in rest
- shuffling gait
Cognitive disorders
- memory loss
- indecisiveness
Psychiatric disorders
- mood impairment whereby state of mind is inappropriate to contextual situation
- delusions and confusion
Latest news
Patiëntendag 18 juni 2021
Wij zijn weer van plan een patiëntendag te organiseren. Deze dag gaat wel door. In verband met corona wordt het mogelijk een digitale editie. Dus via […]Patiëntendag gaat helaas niet door op 11 december
In verband met de opleving van het coronavirus hebben wij besloten om de patiëntendag van 11 december niet door te laten gaan. We wilden het misschien […]
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